SCHR with Institute" für Humangenetik der
Universität Bonn " for Mental retardation with Dr.. med. Rami Abou Jamra.
Institute" für Humangenetik der Universität Bonn
" for Mental
Dr.. med. Rami Abou Jamra
Brief storming of the most
1- I will inform you when I am visiting Syria the next time, in order to
organize a public lecture of mental retardation and genetics.
2- Every person or family who asks a question regarding genetics can be
advised by me at my next visit, if he/she wishes. Thus, establishing a
list of interested persons with telephone numbers would ease calling
them and offering genetic counseling later, even if my next visit is in
a couple of months.
3- Families proper for the study are interesting, but I would be pleased
to discuss genetic matters of everybody.
4- Attached are the following documents:
a) Headlines of the families interesting for the study, contact details
and a clear offer for counselling in genetic matters (in the next mails,
since this fits for only three documents).
b) Agreement on participating in the research which must be signed by
each person (for children by their parents) who is going to participate.
c) A paper including information about the study.
d) A questionnaire to document all symptoms of affected persons.
For points b, c, and d, the workers in Assalamyah may do this
themselves, or leave it till I do this when I come.
Dear Mr. Nabil Eid, I hope to hear soon from you and I am ready to
answer any question if I can.
Rami Abou Jamra
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information for families